The Human Variome Project’s vision is for a world where the availability of and access to genetic variation information is not an impediment to diagnosis, prognosis and treatment and minimization of inherited disease. The fulfillment of this vision requires the involvement of many people from both technical and non-technical disciplines and the formation of large international collaborations. The recently announced partnership between the Human Variome Project and China has provided a number of opportunities for these collaborations to be undertaken.

The Human Variome Project Beijing Meeting will be a forum where with the support of China, the necessary international collaborations can be discussed, debated and formalised. It will continue to address the complex issues of how collaborative projects can be initiated and developed to produce positive clinical and research outcomes and allow the work to start. Meeting participants are drawn from the most prominent and representative experts in each of the relevant disciplines worldwide. The Human Variome Project Beijing Meeting aims to take the Project to the next level of international collaboration by specifically:

• Cementing & establishing collaborative relationships with relevant international bodies

• Introduction of the Chinese Node Roadmap

• Discussing the key issues involved in developing an HVP Country Node including:

                -  Data models for country collection

                -  Software platforms

                -  Ethics

                -  Issues faced by low/middle income countries

• Discussing key issues in establishment with the support of China of Gene/Disease specific databases including:

                -  Pathogenicity assignment

                -  Curation

• Facilitating the development of guidelines, protocols and support to assist the establishment and maintenance of gene/disease specific databases

• Developing a plan for the selection of genes and diseases for which databases are to be established and/or assisted

• Establishing procedures for the alignment of existing national and gene/disease specific databases

Directly following the meeting there will be a one day inaugural meeting of the International Confederation of Countries Advisory Council, this will be attended by the representatives of the HVP Country Nodes.

The meeting will be simultaneously translated from English to Chinese and Chinese to English.

Delegate Registration 

The Registration fee is quoted in Australian dollars AUD$.  

Fee includes:

• full delegate registration for the meeting 9th - 11th December 2011.  (Attendance at the satellite meetings on the 8th and 12th of December are by invitation only)
• return transfers from the airport to the Radegast Lake View Hotel (the conference hotel) - so please make sure to include your arrival and departure details during your registration
• coffee breaks and lunches
• Welcome dinner at the Radegast Lake View Hotel follwed by a night bus tour of Beijing
• The Gala dinner at Peking Duck Restaurant

      Full Delegate Registration = AUD$ 440

Accompanying Person Registration

You might like to bring your partner or other guest to Beijing who will not attend the meeting but would like to attend the dinners and social event.  If so, please register them as an Accompanying Person at the time you register (or you can come back and do it).

Two types of Accompanying Person Registration:

1. Accompanying Guest (NOT a delegate) 8th - 11th Dec:  ONLY for those invited delegates who are attending on the 8th Dec.

• dinner 8th Dec.
• Welcome dinner 9th Dec.
• Gala dinner 10th Dec.
• Night bus tour of Beijing

2. Accompanying Guest (NOT a delegate) 9th - 11th Dec.  For all other deleates

• Welcome dinner 9th Dec.
• Gala dinner 10th Dec.
• Night bus tour of Beijing

Important Information About The Registration Process

During the registration process, you will be asked for extra information in relation to transfers and invitation letters for VISAs. Below is what you need to have ready:

1.     Passport Information - MANDATORY - You must have this ready at the time of registration

This information is required so we can issue you a letter of invitation so you can obtain your VISA promptly (see also Travel and VISAs link above).  We will issue the letter as soon as possible after you register (this may take a few days as we need to get each letter from China) but in order for us to do so we need to collect some personal information. When registering please have ready: 

• Name as shown EXACTLY as in your passport
• Sex: Male/Female
• Date of Birth
• Passport number
• Country of Passport issue
• Expiry date of Passport

Registration will not work unless you have this information. Please be truthful.

2.     Flight Information - OPTIONAL - You can leave these blank and log back into your account using the same email and password you create in the registration process

Please provide us with the below information so we can arrange your transfers. If you don't have these at the time of registration you can add them later after logging into your account. If you don't include this information we will not be able to arrange your transfers.

• Arrival date
• Flight number
• Flight arrival time
• Departure date
• Flight number
• Flight departure time

Accommodation

Rooms have been blocked at the Radegast Lake View Hotel, the conference hotel at very reasonable rates, they may be booked during the registration process. Please see the Accommodation tab above for details of the hotel and how to book your room.